Resources

LFS Newsletters

• 2018 Study Newsletter
• 2016 Study Newsletter
• 2014 Study Newsletter

LFS Science and Research

• GeneReviews
• Medline Plus/Genetics Home Reference
• Online Mendelian Inheritance in Man (OMIM)
• ClinGen TP53 Variant Curation Expert Panel
• Genetic and Rare Diseases Information Center
• Clinical Trials and Research Studies

Support

• Li-Fraumeni Syndrome Association (LFSA)
• Living LFS
• Fact Sheet for Medical Providers
• Quick Reference Resource for Mental Health Providers
• Talking to Children
  • LFS and Living my Best
  • Robot Music
• Genetic Counseling and Testing
  • LFSA Genetic Counseling Advisory Board
  • Find a Genetic Counselor
  • Should Genetic Testing be Offered for Children?

Workshops

The second Li-Fraumeni Syndrome Association & Research Consortium meeting was held on October 26, 2013. View information and links to the LFS Conference videocast.

The Li-Fraumeni Syndrome Clinical Research Workshop was held at the National Institutes of Health on November 2, 2010. This workshop was designed to build a research consortium of investigators focused on advancing understanding of LFS and to help families with support and advocacy. View the entire LFS Clinical Research Workshop (2010).