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Support and Resources
Support and Resources
- GeneReviews Summary on LFS
- ClinGen TP53 Variant Curation Expert Panel
: This group curates TP53 variants and deposits them in the ClinVar database - Connect My Variant
Support
- Li-Fraumeni Syndrome Association (LFSA)
- Living LFS
- Living LFS Hardship Grant: financial support for individuals with LFS
- Living LFS Hardship Grant
- Quick Reference Resource for Mental Health Providers (PDF)
- Resources for Children
- LFS and Living my Best (PDF)
- Robot Music
- Camp Kesem: kid’s camp for children with a parent with cancer
- LFS and Living my Best
- Resources for AYAs
- Camp Koru: Rediscover your life beyond cancer
- First Descents: adventure trips for AYA survivors and caregivers
- Camp Koru
- Genetic Counseling and Testing
- Mental Health Support (Finding a Licensed Therapist)
- Therapy for people with genetic syndromes
- Psychology Today
- Better Help
- Flatwater Foundation: Specific to families coping with cancer
- Therapy for people with genetic syndromes
- Cancer Support Sites
- Imerman Angels: Free personalized one-on-one cancer support for cancer fighters, survivors, previvors, and caregivers
- Sidelined: resources and support for individuals who have been forced to stop sports because of medical conditions
- Imerman Angels
- Financial Support
- No one Left Alone: Access to quality cancer care
- DollarFor: Free counseling to help you access hospital charity care to pay medical bills
- Family Reach: financial support for families facing cancer
- Cancer Legal Resource Center
- Cancer Financial Assistance Coalition
- Cancer Care
- Triage Cancer
- No one Left Alone
- Help with Insurance Appeals and Claims
- Claimable: Assistance with insurance appeals
- ProPublica Claim File Helper: find out why your health insurer denied your claim
- Claimable
- Mastectomy and Breast MRI
- MRI Financial Assistance
- Unite For Her: Resources and Support specifically for breast cancer
- Risk Reducing Mastectomy
- Options for Reconstruction
- Post-mastectomy photo gallery
- MRI Financial Assistance
- Preimplantation Genetic Diagnosis (PGD) and Fertility
- Adoption